Friedreich's Ataxia Research Association; is dedicated to the pursuit of a treatment and cure for Friedreich's Ataxia (FA), a fatal, genetic, neurological degenerative disease that affects 1 in 30,000 people. FA initially causes lack of co-ordination, slurred speech and impaired walking, usually striking during the childhood and adolescent years.
As it progresses, FA causes complete incapacitation, vision, hearing and speech failure, combined with severe heart disease, scoliosis and diabetes. In later stages, patients usually suffer from cardiac failure in their late thirties. Throughout, intellect remains unimpaired. As FA causes a greatly reduced life expectancy, it is a race against time for all FA sufferers and their families. FARA is the only not for profit organisation in Australia and New Zealand funding FA research and is made up of 10 relatives of FA patients.
FA around the world
South Australia: http://www.fainsa.org/
Friedreich’s Ataxia Parent’s Group: http://www.faparents.org/fapg/
For further reading please download the Clinic Brochure provided by the Friedreich's Ataxia Clinic, Melbourne.
Stephanie’s Hope: http://www.stephanieshope.com/
Melinda’s Story: https://www.givealittle.co.nz/cause/melindamouse
National Organisation of Rare Diseases: http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/7/viewAbstract
FA Project: http://thefaproject.org/index.html
Cure FA: https://www.curefa.org/
Ride for Ataxia: http://rideataxia.org/