About Us

About Us

Friedreich’s Ataxia Association of Victoria Incorporated (FAAV) is a non-for-profit charitable organization.
FAAV’s principal purpose is to enhance the quality of life for people that suffer from the neurological degenerative disease, Friedreich’s Ataxia. Founded in 1999 FAAV has been working together to raise awareness about FA and help other families and sufferers.

Our Mission

FAAV is a non-profit organisation run by people with Friedreich’s Ataxia, their friends and family and can only achieve its goals with the assistance of generous donations from members of our community and without these donations, serving those in need would not be possible.
FAAV aims to raise money to help improve the quality of life for those living with Friedreich’s Ataxia, and also raise awareness of the condition.
While the focus to date has been research, the money raised by FAAV will also be used to fund much needed physical and social activities for Friedreich’s Ataxia sufferers until treatment or a cure can be found.

Who Are We?

President: Jason Coffey
Secretary: Marcus Purdue
Treasurer: Mick Coffey
Public Relations: Lee Bailey

Committee members:
Adrian McLean
Catherine bye
Ian Jones
Lawrence Wilson
Mark Glascodine
Renee Reidy
Tanya Coffey


FAAV Membership is open to all those affected by FA: sufferers, parents, carers, friends and family. Our aim is to keep you in the loop, primarily to develop and maintain a support network.
Receiving updates and information on:

Scientific & Research News
Upcoming events
Fundraising Activities
Social Group Activities & Facebook
Information & Updates on Community Support Services.

You can download our Membership/Donation form by clicking here.
Fill it in and please send it to:

Friedreich Ataxia Association Victoria
902/163 Cremorne Street
Richmond, Victoria 3121

**Membership renewal will soon be available here online via paypal.

Looking for more information about FAAV?
Feel free to contact us via our contact page or
Download our newsletter here.